Reframing HAE: Steps
You Can Take NOW
Define Life by Your Goals, Not Your Diagnosis
Consider the full story of your life with hereditary angioedema (HAE), not just the attacks. To help prevent and manage attacks, many people spend a lot of time and energy on coordination, insurance claims, appointments, and even mental planning. Some people find that keeping a journal of medications, attacks, and appointments can be helpful.
Look at the bigger picture for your care plan by looking at the longer timeframe. The goal of treatment is to live, work, play, and socialize without limitation from HAE symptoms.1
Find More Answers in the Patient Brochure
How could your life be different? Ask your doctor how to minimize attacks and stress from HAE. If you can be specific about the challenges you are personally experiencing, you can have more productive conversations with your healthcare team. Download the patient brochure for some suggested questions you can ask to help start deeper conversations about your goals beyond attack management.
TALK TO YOUR DOCTOR ABOUT THE GOAL OF LIVING YOUR LIFE WITH FEWER LIMITATIONS FROM HAE.
Find Strength in a Shared Vision
Find strength inside yourself, inside your family, and inside your community. Get connected with the US Hereditary Angioedema Association (HAEA) to see how others are advocating, and use HAEA’s “Shared Decision Making Tool” to help prepare for appointments and define treatment goals.
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Reference:
- Busse PJ, Christiansen SC, Riedl MA, et al. US HAEA Medical Advisory Board 2020 guidelines for the Management of Hereditary Angioedema. J Allergy Clin Immunol Pract. 2021;9(1):132-150.e3. doi:10.1016/j.jaip.2020.08.046
This information is for educational purposes only and is not intended to constitute medical advice. For all healthcare decisions, talk with your healthcare team.